She hasn't been able to eat more than a bite of food in years. Her condition has worsened and she can no longer eat at all.
Marsha has exhausted all options and her last hope of ever being able to eat a meal again is with a $61,000 procedure that her insurance will NOT COVER. This procedure is one of only two life-saving options she has left. The other, the one the insurance will cover, is a feeding tube that would render her confined to her home with a line directly into a vein in her neck. One that would have to be in place until the day she dies. Given that her last feeding tube was rejected within months, this option isn't much of one.
Marsha has been down the road with many other procedures, and one by one, her body rejected or stopped responding to them...
When I think about all the foods I love, I dont know how she's lived like this. When I think about how thin and frail she's gotten (hovering around 100lbs for her 5'9" frame,) I worry knowing that number keeps falling exponentially. And when I think about poverty being the only reason my friend may lose her battle with a rare and painful disease, it makes me angry.
Her body no longer has the means to even heal itself, or maintain itself. She's finding it next to impossible to recover from the surgeries she keeps getting to mend her rapidly-deteriorating body.
My Husband, Xac, and I created this to help save her life. She has done so much for so many, and suffers through with a smile on her face and a fight I have never seen before behind her eyes.
It's time the rest of us do something more to help her fight. Because she is definitely not going to go without one.
Thank you very much for your time.